Tag Archives: epidermolysis bullosa
037. An Auction for DebRA!
[This is cross-posted from my personal blog, to make sure that everyone sees it. It's super important!] For those who don’t know, DebRA is the Dystrophic Epidermolysis Bullosa Research Association of America – an organization dedicated to finding a cure … Continue reading
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031. Casey’s big summer
Wow – it has been WAY too long since I’ve updated! I’ve been updating a bit more regularly on my personal blog, and have neglected to keep up with the one you REALLY want to read, since it’s all about … Continue reading
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013. Tomorrow’s the big day! (for Jonah!)
That’s right, folks… the day we have all been praying for… Jonah gets to go home!!! I am SO excited for this sweet little man to finally be at home where he belongs, safe in the arms of his mommy … Continue reading
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011. More on baby Jonah: how you can help!
For those just joining the Fulks fam, you can find out about baby Jonah Williams on his mom’s blog, the Williams Family Blog. For specific info on Jonah: Patrice’s post on Jonah’s birth Initial diagnosis, before biopsies and major tests Most … Continue reading
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009. Baby Jonah Alexander Williams
URGENT PRAYER REQUEST A friend from Bible camp in NC, Patrice Williams, and her husband Matt had their little boy, Jonah Alexander, yesterday afternoon. However, Jonah was born with what may be a very serious skin condition, Epidermolysis Bullosa… the … Continue reading
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